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Submitted by beth on Tue, 12/01/2009 - 13:14.
Millions Search for Answers to Lupus in 2009!
“Lupus” Ranked Second Most-Searched Health Condition on AOL
Tuesday, December 1, 2009
December 1, 2009 – The global Internet service AOL today reported that “lupus” was its second “most-searched” health condition in 2009—just after “swine flu” and before “diabetes” (3rd most-searched) and “pregnancy” (4th most-searched) and “depression” (5th most-searched).
People are so thirsty for information on this mysterious and difficult autoimmune disease that exhausts, frightens, and sickens more than 1.5 million Americans.
“We just want this disease figured out—and fast,” people tell us. So please share the Lupus Research Institute site with all the people you know, so they can see where answers not just to “what is lupus” but “how to fix lupus” are finally streaming in. To send our link, visit the homepage and hit the “share” button at the top right of the page, and share by email or your favorite social networking site.
To correct the above
To correct the above statement about where they can see answers on the LRI's site on "how to fix lupus", sadly there is no cure yet; there are no "answers” on “how to fix lupus". I have lupus, I'm not fixed. There are treatments to help keep the disease manageable, but no cure. The LRI does its best to find a cure, but there is no cure yet and the symptoms range from mild to life threatening and sometimes fatal. I have SLE and am running pretty low on treatment options and hope for a cure in my lifetime. What the LRI really needs is research money to help find a cure for those of us suffering with this crippling, painful disease. It is hard to diagnose, there are only 3 drugs-yes 3--- currently FDA approved to treat Lupus and it has been over 50 years since the FDA has approved ANY new drug to treat Lupus...yet it is the 2nd most searched health condition in 2009?
We need to do more as patients...we can help promote Lupus Awareness, have our own fundraisers, give proceeds to the LRI from our businesses or ask the company you work for if they can...something. We all have the ability to make a difference here, regardless of the economic state...even doing a research study. Check out the Center for Disease Control, www.CDC.gov, they have clinical trials and other studies Lupus patients can participate in by giving blood, doing an ultrasound., etc...
Let’s all do our share to help further Lupus research and find a cure sooner.
Never think that you cannot be part of the difference, you most certainly can.