The voice for lupus
The LRI sounds the siren of need for strong federal support of lupus research among members of Congress, health groups, the pharmaceutical industry, and the public.
We advocate for lasting change in numerous ways:
We Spearhead a National Coalition. In 2004 the Institute increased its breadth and scope by gathering together state and local patient organizations into a National Coalition. This “patients’ voice for lupus research” is a mighty engine for advocacy work:
- mobilizing and ensuring funds for lupus research
- protecting the rights of people with lupus to get—and keep—adequate healthcare insurance coverage
- working to eliminate racial disparities
- promoting education and awareness of the seriousness of lupus
- empowering people to effectively advocate themselves for improved treatments and a cure.
We Raise Funds. With current government funding of lupus nearly flat, private sector support for lupus research only rises in importance. LRI has stepped up to the plate, not only finding the dollars but leveraging millions in funds for lupus at the federal level.
We Broaden Public Awareness. For Americans to understand the pressing need for the kind of work that LRI supports, the public needs to be educated about lupus.
We Empower Patients, Families, and Friends. The time and involvement of caring citizens makes an enormous difference in sounding the call for more lupus research. Some distribute information. Others organize lupus awareness and fundraising events. Many donate.
Call or email us to get the tools to
- spread awareness in your community
- spread awareness on the Web
- tell friends and family what’s going on
The LRI can’t accomplish its goals without you. Make a difference.
A Patient’s Voice in Lupus Research
“I was thrilled to share my experiences and concerns with the esteemed panel with which I worked, and humbled to hear from several reviewers that my insights made a tangible and positive difference.” More »